For caregivers and families of loved ones with Dravet syndrome and Lennox-Gastaut syndrome (LGS)
Dravet syndrome and LGS are rare forms of epilepsy that require constant care.
So who cares for the caregiver? ONWARDTM does.
Challenge
When you’re a caregiver for someone with Dravet syndrome and LGS, there really is no downtime. Unpredictable seizures keep you always on alert and that keeps you from sleeping. If the patient isn’t mobile, they’re relying on you to carry them and assist with many basic activities of daily living. The threat of the next seizure and the possibility of an emergency situation creates immense, unrelenting stress.
Given the physical, emotional (and financial) toll of Dravet syndrome and LGS, it's easy to see why caregivers need all the help and support they can get.
SOLUTION
The ONWARD Patient Support Program simplifies the patient journey with tools and resources to support the caregivers, healthcare providers and office staff, making it easier for patients to get, start, and stay on treatment.
For caregivers, the care team is available 12 hours a day, 5 days a week to better accommodate the needs of caregiver schedules—when they need ONWARD, it’s there. FINTEPLA Clinical Nurse Educators (CNEs) will help answer questions, prepare caregivers for conversations with HCPs, discuss FINTEPLA data, talk about the REMS program, and educate on financial support programs. For families where the patient is on FINTEPLA, a dedicated Care Coordinator is assigned who reviews insurance, helps with treatment reminders and expectations, and works with the healthcare providers and office staff to personalize the treatment plan.
INSIGHT
The around-the-clock challenges of caring for someone with Dravet syndrome and LGS make a helping hand a lifeline. The ONWARD Patient Support Program recognizes the need to help caregivers navigate a difficult disease.
OBJECTIVES
The ONWARDTM Patient Support Program simplifies the patient journey with tools and resources to support the caregivers, healthcare providers and office staff, making it easier for patients to get, start, and stay on treatment.
For caregivers, we offer support through a Clinical Nurse Educator and dedicated Care Coordinator to answer questions about Dravet syndrome or LGS, the FINTEPLA data, the REMS program, or financial support/insurance.
In short, ONWARD helps caregivers feel more comfortable with a FINTEPLA prescription knowing the brand has their back.
APPROACH
Given the challenging situation of having a loved one with Dravet syndrome and LGS, caregivers don’t just deserve empathy but support that respects their time. The ONWARDTM campaign strikes a balance between feeling clinically reliable and emotionally inspiring, using warm tones and direct language that provides answers without fluff.
ECOSYSTEM
To truly demonstrate an appreciation for the needs of these caregivers, we developed the ONWARD campaign ecosystem with materials that target specific timepoints in the journey.
RESULTS
222%
increase in FINTEPLA awareness among caregivers of patients with LGS
135%
increase in FINTEPLA awareness among caregivers of patients with DS
116%
increase in FINTEPLA new patient starts
