For caregivers and families of loved ones with
Dravet syndrome or Lennox-Gastaut syndrome (LGS)
SOLUTION
The ONWARD® patient support program simplifies the patient journey with tools and resources to support caregivers, healthcare providers, and office staff, making it easier for patients to get, start, and stay on treatment.
For caregivers, the care team is available 12 hours a day, 5 days a week to better accommodate the needs of caregiver schedules—when they need ONWARD, it’s there.
FINTEPLA Clinical Nurse Educators (CNEs) will help answer questions, prepare caregivers for conversations with healthcare providers, discuss FINTEPLA data, talk about the Risk Evaluation and Mitigation Strategy (REMS), and educate on financial support programs.
For families in which the patient is on FINTEPLA, a dedicated Care Coordinator is assigned to review insurance, provide treatment reminders and expectations, and work with healthcare providers and office staff to personalize the treatment plan.
Challenge
When you’re a caregiver for someone with Dravet syndrome or LGS, there really is no downtime. Unpredictable seizures keep you always on alert and that keeps you from sleeping. If the patient isn’t mobile, they’re relying on you to carry them and assist with many basic activities of daily living.
The threat of the next seizure and the possibility of an emergency situation creates immense, unrelenting stress. Given the physical, emotional, and financial toll of Dravet syndrome and LGS, it’s easy to see why caregivers need all the help and support they can get.
INSIGHT
The around-the-clock challenges of caring for someone with Dravet syndrome or LGS make a helping hand a lifeline.
ONWARD recognizes the need to help caregivers navigate a difficult disease.
OBJECTIVE
The ONWARD Patient Support Program helps patients get, start, and stay on treatment by providing tools and resources for caregivers, healthcare providers, and office staff.
Stay on track with FINTEPLA
Started FINTEPLA
WHERE CAN I GET STARTED?
RESULTS
222%
increase in FINTEPLA awareness among caregivers of patients with LGS
135%
increase in FINTEPLA awareness among caregivers of patients with Dravet syndrome
116%
increase in FINTEPLA new patient starts
WHERE CAN I GET STARTED?
We can also help you manage your loved one’s care-related information.
Create a personalized care guide for your loved one’s journey.
Grant your care team access to critical information in a few simple steps.
Manage medications, schedules, and daily routines in one central location.
Control who sees your care guide content within a secure system.
Learn how CareCompass can support you in managing your loved one’s care-related information. With this free online resource, you can build a care guide to keep track of vital details and visualize your loved one’s care schedule. It allows you to easily collaborate with your loved one’s care team and also reflect in a safe space through a journal feature.
Considering FINTEPLA
These resources can help answer your questions before you get started on treatment.
FINTEPLA CLINICAL
NURSE EDUCATORS (CNEs)
If you’re considering FINTEPLA for your loved one, these experts in Dravet syndrome and LGS can answer questions you may have about FINTEPLA and more:
✔ Prepare you for conversations with your loved one’s healthcare provider
✔ Discuss results of FINTEPLA clinical studies and what they may mean for your family
✔ Answer your questions about the FINTEPLA REMS and required echocardiograms
✔ Educate you on financial support programs for access to FINTEPLA treatment
Meet FAYE, our 24/7
virtual assistant
If you’re considering FINTEPLA for your loved one, you can chat anytime with Faye, a virtual assistant trained by FINTEPLA experts who’s always available on Fintepla.com to answer your questions 24 hours a day, 7 days a week.
More ways to connect, anytime and anywhere,
even from your mobile phone
In-office Video Book with FAYE
When you’re in your loved one’s healthcare provider’s office, the staff will provide you with a Video Book featuring Faye, who will offer you educational videos about FINTEPLA and caregiver stories. This will help you to have more meaningful conversations with your loved one’s healthcare provider.
Your loved one’s healthcare provider will give you educational materials to take home with you while you’re considering FINTEPLA for your loved one.
ONWARD Copay Assistance Program
Started FINTEPLA
FINTEPLA Welcome Kit with ONWARD
Who can I talk to for support during treatment?
When your loved one begins treatment with FINTEPLA, your family will be given a dedicated Care Coordinator.
ONWARD Care Coordinator
Get to know your dedicated Care Coordinator, a registered nurse who has expertise in Dravet syndrome, LGS, and FINTEPLA. They will be specifically assigned to provide your family with one-on-one support throughout treatment.
Your Care Coordinator will:
-
Review insurance coverage with you and offer options
-
Explain what to expect and provide treatment reminders
-
Help find echocardiogram locations nearby, or even schedule one at your home
-
Connect with a specialty pharmacy to get your loved one’s treatment
-
Work with you and your healthcare provider to create a personalized plan that keeps your loved one on track
Stay on track with FINTEPLA
How can ONWARD help my loved one stay on track?
ONWARD MOBILE APP
One convenient place to chat with your Care Coordinator, track the progress of referrals and medication shipments, and receive echocardiogram reminders.
EDUCATIONAL VIDEOS ON REMS AND ECHOCARDIOGRAMS
The FINTEPLA REMS was designed with your loved one’s safety in mind. It requires that they have heart checkups (echocardiograms) once before starting treatment with FINTEPLA, again every 6 months during treatment, and once 3-6 months after their last dose. This helps manage potential safety concerns.
Your loved one's safety comes first
Risk Evaluation and Mitigation Strategy (REMS)
Tips for your loved one's first echocardiogram
AT-HOME ECHO PROGRAM
Helping eligible patients and their families comply with FINTEPLA safety monitoring
At UCB, we strive to make the FINTEPLA REMS as accessible as possible. That’s why we’ve established a network of sonographers who can travel to eligible families unable to access an echocardiogram (echo) facility due to their geographic location or disease-related limitations.
